Kermanshah Chamber of Special and Incurable Diseases (KCSID)
is a Non-Governmental Organization (NGO) established with the superior motive to serve humankind with particular functionality in areas of charity and medical care. We bring essential healthcare within the reach of the underprivileged with compassion. Mr. Hossein Biglari is the head of this charity institute.
We are the first non-governmental organization in Iran who support a wide range of people with different diseases about 36.000 patients. KCSID does not have any budget and we fulfilled a great part of our mission with public support. We accept generous contributions of individual benefactors and corporate sponsors support to reach our goals on enhancing healthcare.
This morning, the heads of Special Patient’s Associations met with the head of Kermanshah University of Medical Sciences, Dr. Moradi, to report problems of special patients.
The meeting focused on the problems and needs of special patients, such as Hemophilia, Thalassemia, MS and kidney disease.
At this meeting, in the presence of the chairpersons of the Special Patients’ Associations, by the Manager of Chamber of Special and Incurable diseases, and the Director of Kermanshah Kidney Diseases Association, Mr. Hossein Biglari thanked Dr. Moradi for the valuable efforts of the President of Kermanshah University of Medical Sciences.
By the perseverance and pursuit of Professor. Ali Pourmotabbed
The two hemodialysis machines were donated to the Hemodialysis ward of Imam Reza Hospital by Dr. Tahereh Pourmotabbed and Dr. Tayebeh Pourmotabbed, the memorial of Mr. Ali Akbar Pourmotabbed, Mrs. Malouk Pourmotabbed and Dr. Qasem Pourmotabbed. The cost of this machines are about 4 billion Rials.
It should be noted that for about six years, they have provided a house in Kermanshah for the care of orphan.
At the provincial welfare meeting, which was held at the meeting office of State Welfare Organization, the General Director General of State Welfare Organization of Kermanshah province said: the main priority of this office is the employment of the help-seekers, and called on all governmental organizations to help.
Dr. Fatemeh RezvanMadani added: “The best way out of the dependency of the help-seekers on a monthly basis is to make sustainable employment, and given the high inflation and high household incomes, reliance should not be on monthly pensions.
Dr Farhad Tohidi, director of Shariati Alborz Hospital, said:
Customer Respect and Customer Satisfaction Improvement is planned at Dr. Shariati Alborz Hospital.
In this plan, people over the age of 65, pregnant mothers, high risk mothers, special patients and ill-treated patients, and martyrs’ families will be given priority to the visit of doctors.
Four Iranian medicines were produced by researchers at Iranian cancer and diabetes companies.
At a ceremony attended by Health Minister Saeed Namaki, Dr Sorena Sattari, Vice President of Science and Technology, Dr. Shahbazi, Alborz Governor Dr. Hossein Karim, Head of the Alborz University of Medical Sciences.
Anticancer medicines are expected to have a $ 1 billion potential market in the country. The production of these important medicines strengthens Iran’s position among advanced medicine-producing countries.
While the Iranian version of the medicine, similar in quality or even better than the German medicine, is only for sale at a price of five percent of the foreign sample. The drug was first marketed in 2012, and Iranian researchers have succeeded in achieving the complex technology of this medicine after seven years.
On the occasion of the 18th of Ordibehesht, the day of the Special and Incurable Diseases in Iran, the first meeting of the Special diseases Committee were held in Kermanshah Province at the Governor’s Office in Kermanshah and in the presence of the Manager of Social and Cultural Affairs of Kermanshah Governor, Mr. Goodarzi and the Head of the chamber of Special and Incurable diseases, Mr. Biglari.
Dear Mr. Bagheri,
Congratulations on electing you as a vice president of Kidney Foundation of Iran, which expresses the commitment, efficiency, merit and prominence in the scenes of honest service to the patients and Iran. I wish Your success and prosperity are at the forefront of God’s concern.
Manager of Chamber of Special and Incurable Disease
The chairman and the deputies of Kermanshah University of Medical Science met with Mr. Yousefi Governor of Javanrood to continue their trip to the northwest of the province.
During the visit, the university chairman stated that Javanrood is one of the most important health centers of the province and the health center of the northwestern region of the province, said: “The policy of the University of Medical Sciences is strengthening the city of Javanrood in terms of health activities and promotion of specialized medical services.”
Dr Moradi said: “There are currently 21 practicing specialists in the city, which is ranked second among the provincial cities after Islamabad.
The head of Imam Reza Hospital Complex, Kermanshah, announced that it would join the National Campaign, “Sympathy Spring,” calling on all the professors and staff of the hospital to join this campaign.
Dr. Ali Soroush said in a conversation with the correspondent of Meda Kermanshah, adding: “The staff of this hospital has never confined itself to treating acute physical pain, and has always felt responsible for relieving the wounds of their fellow citizens.
He recalled that previously, cash and non cash contributions to the personnel and professors of Imam Reza Hospital of Kermanshah were sent to the flood-prone areas of Iran.
The head of the Imam Reza Hospital, invited all the professors and staff of the large hospital to join this public campaign, said: I can declare as representative of 2600 staff members and faculty members of this hospital complex that “We are still ready to help any flood victims”.
It is worth mentioning that a number of student activists from the universities of medical sciences of Iran, by launching the “National Sculptor of Iranian Academicians” entitled “Sympathy Spring”, requested all students, staff and professors of the medical universities of the country to join in this campaign, Residential houses destroyed in flood-hit areas of the country.
Based on this plan, any amount of cash donations will be collected by academics at any university, twice as much as the subsidies from the country’s supportive institutions, and the degraded residential units of some of the compatriots needing to be restored.
It should be noted that this dynamics will, in the best of transparency, announce the funds of each university and will expose the houses made by each university to all participants in the campaign.
Dr. Fatemeh Hashemi, regarding the Foundation’s program for 1398, said: “The important program we are working on is the construction of a cancer center, and I hope it will be completed in the new year, because at the moment the conditions are very difficult and all prices are three to four times higher.” I want people to help us finish the project.
The head of the Special Diseases Foundation emphasized the need for free medicine cancer treatment and MS.
Dr. Fatemeh Hashemi, head of the Special Diseases Foundation for the Patient Status, said: “After establishing the foundation and the activities we carried out, people trusted us and increased popular support. On the day the Foundation was established, there were a total of 128 treatment centers for specific diseases, but now there are more than 1,000 special disease centers in the country.
She said: “In the cities, we are reviewing the issues with the authorities, and we ask the Ministry of Health and the Governors to set up these centers and we also help them, in fact, we have set up the Special Diseases Foundation for the protection of special patients.” .
Head of the Foundation of Specific Diseases, declaring that it is our duty to inform them about the rights of patients, and said: “Till now, we have distributed more than 2,700 dialysis devices in the country for free, perhaps several times the size of the hospital bed for Talassemia patients, chemotherapy and dialysis patients. We have also helped set up centers, and so far several centers have been built by us and patients are using them.
“The major program we are working on is the construction of a cancer center, and I hope it will end in the new year, because at the moment the conditions are very difficult and all prices are three to four times, I I want people to help us finish the project.
“We also want to push things forward in the context of autism disorders, and we’re taking action on the ground, but it’s not good for us,” he said.
She said about cancer drugs: Cancer drugs have specific formulations that are expensive and come from outside Iran. It is difficult to pay for these families, but there are also drugs that need to be paid by the patient, which is still payable. It is difficult for the patient, because these drugs are relatively expensive, of course, we can help as much as we can.
Hashemi added: “Last year, we only donated more than 40 billion IRR to MS patients and cancer, but the Ministry of Health should finally be free to pay for cancer patients and MS, and not pay for themselves.”
She concluded, in the end, about the success rate of the Health Development Plan: this plan has not only failed, it has seriously damaged the country.
The head of the Kermanshah University of Medical Sciences announced the agreement of the deputy director of the Ministry of Health and Medical Education with the assignment of a CT scan to the city of Paveh.
Dr. Moradi said that the construction of the new physical building of the new hospital in Paveh has been completed and is about to equip: “This service is worthy and important to the noble people of the city of Paveh, one of the distant and rugged cities, The CT scan device, which is one of the right demands of the people of the region, will be completed.
He said the hospital has specialized specializations, including radiology, which can provide an effective service to the people. Fortunately, in the meeting with the Deputy Minister of Health of the Ministry of Health, Dr. John Babaei agreed to assign a CT scan to this city and It should be added and installed this year.
According to our request of Kermanshah Chamber of Special and Incurable Disease and the Kidney Foundation of Kermanshah To visit UZBrussels Hospital and renal wards and hospital facilities by our health ambassador, Dr. Nazanin Biglari, fortunately Prof. Dr. Karl Martin Wissing, the head of nephrology department accepted kindly and a meeting was planned.
In this meeting, Dr. Nazanin Biglari was very well welcomed by employers, doctors and staff of the hospital especially the cooperation of Mr. Nico Van Paesschen the head nurse of UZBrussels Hospital
She visited renal wards, RO wards and the section of repairing Dialysis equipment. In addition, she became familiar with the services of the hospital for patients, models of equipment and etc. we wish in further visits the hospital will cooperate with us.
The purpose of this meeting was to see European hospital facilities for patients So that we can provide such services to our patients. Furthermore contacting and negotiation of Iranian hospitals with European ones especially in Belgium. Currently in Kermanshah, Iran there is Emam Reza Hospital which is the professional medical center of west of Iran. And also there are Emam Khomeini and Taleqani Hospitals.
We hope to continue our relations and in other cases such as cancer and Chemotherapy in the future. We want to exchange new sciences between two countries of Iran and Belgium. And we invite the scientists and professors to visit Kermanshah and share their experiences with our professors and specialists. Also our professors and surgeons are eager to visit this hospitals and use the new scientific and practical cases. We hope this close relations will be accomplished and the result will be Well-being and comfort of patients that we can reduce their pains. We do our best to provide the patients the best welfare, cultural, surgical and hospital services.
With the impressive presence of people, for the first time in the World Cancer Day, with the motto of “Sport is the Medicine”, during the World Cancer Symposium and Celebration on Feb. 04, 2019, at the Nobahr Park, Kermanshah.
This program was organized by the People’s Institution of Ghoghnoos, the first Darts sport competition for cancer patients With the symbol of the Pink Ribbon was held with the support of the Board of Sports of Specific Patients and Transplants Sports board of Kermanshah Province.
It’s worth mentioning; this course of the competition, specially for ladies and gentlemen, was held for whom treated for cancer.
For the Dart Competition, the Board of Sports of Specific Patients and Transplants Sports board of Kermanshah give awards to the winners.
In the ceremony #Hossein_Biblari, Head of the the Board of Sports of Specific Patients and Transplants Sports board of Kermanshah, # Nargis_Shabani, Women’s Affairs Directorate, Kermanshah Sports and Youth Department, #Mohammad Reza_Moghaddisi, Director of the Residential House and #Mahtab_Baba_Haidari, Vice-Chairman of the Board were present.
This program was presented by # AbdulRezaArmandeh, a good and capable presenter of Kermanshah.
Manager of General Affairs Department of Kermanshah Governor, Mr. Goodarzi, Ms. Bakhtiari, Manager of Kindney Foundation of Kermanshah, Hossein Biglari, visited dialysis department of Imam Reza Hospital in Kermanshah. The gift card was donated to all patients on the occasion of the commemoration of the support week for kidney patients.
Mr. Dariush Arman
Dear Chairman of the Board of Kidney Foundation in Iran
We hereby express our gratitude and appreciation for the attitude and efforts of Your Excellency regarding the presence in the earthquake-stricken areas of Kermanshah Province and visiting the conditions of this region and the renal patients of Sarpol-e-Zahab. Thank God for your health, dignity and pride.
Manager of Kidney Foundation of Kermanshah
According to the IRNA correspondent, Dariush Arman said at a press conference in the Parsian Hotel in Kermanshah , adding that the condition of special patients, especially dialysis, is not suitable for earthquake areas in Kermanshah.
He continued to use all offices and branches of the Kidney Foundation of Iran for the Protection of Renal Patients throughout the country to treat and equip the dialysis sections of the earthquake cities of Kermanshah.
Arman said, “with 50 degrees of heat, and the phenomenon of severe dust in the earthquake areas of Kermanshah, Living for dialysis patients in tents and canteens is difficult in this overheating heat that should be addressed as soon as possible and with multiple efforts to these areas.”
The chairman of the board of the Kidney Foundation of Iran has asked individuals such as Ali Daei, Sadegh Ziabakalam and Mrs. Kalbasi, who have public support, to prioritize their treatment and help special patients and dialysis who suffer a lot.
He set up renal association offices in the earthquake-stricken areas of Kermanshah province and equipped these offices with dialysis beds and equipment from the most important programs of the Kidney Foundation of Iran for the Support of Kidney Patients.
Arman also noted the presence of the most prominent physicians of the kidney transplant in the earthquake struck in the next few days, adding that in addition to displacement, dialysis pain, lack of specialist and neonate are the most important problems of kidney disease in earthquake areas.
According to this senior member of the Association for the Advancement of Kidney Patients, the association has 30,000 people as the oldest kidney sponsor charity association, and over 40 years of its existence, more than 50,000 kidney transplants have occurred under its supervision.
He suggested that good doctors who have a strong presence in all crises, with the support of the Kermanshah University of Medical Sciences, sponsored the construction of 150 residential units for 150 kidney and dialysis patients in earthquake areas.
The manager of Kidney Foundation in Kermanshah also announced that the number of dialysis patients waiting for the transplantation of all the earthquake-stricken areas in the province was 42.
Hossein Biglari said: “Sarpol-e-Zahab has eight dialysis beds, whose wear-resistant equipment does not respond to dialysis patients coming from different areas.”
Bigarli said 750,000 kidney patients undergo dialysis in Kermanshah, 950 of whom live in the province, and the rest of the provinces are adjacent to the province.
There are 127 dialysis beds in the province, some dialysis centers such as Imam Reza Hospital sometimes work on four shifts, which causes burnout, “said Biglari.
He said, “All provincial cities except the Dalaho and Salas-e-Babajani cities have dialysis flat beds.
He said: “Dialysis treatment for patients is free, and each patient gets dialysis three times a week, which costs 40 million rials a month to the government.”
Mr. Hossein Biglari, Manager of the Kermanshah Kidney Foundation visited the dialysis department of Sonqor. The meeting was also attended by the chairman of the city council and the Songor representative in the parliament.
Dialysis services to dialysis patients are presented in the Ghasr Shirin.
After earthquake in the western part of the country and damaging a part of Sarpol-e Zahab hospital, patients in Saripol-e-Zahab receive referral services for dialysis services to Hazrat Abolfazl-e-Abbas Ghasr Shirin Hospital.
There were 4 dialysis machines in the hospital before the earthquake, and four other dialysis machines have been added.
There are 8 dialysis patients in Ghasr Shirin city, and 16 dialysis patients from Sarpol-e Zahab to Hazrat Abu al-Fazl al-Abbas (AS) Hospital are referred to Ghasr Shirin and they use the services Every other day.
Patients who were transferred to this hospital from Serp0l-e-Zahab expressed satisfaction with the status and quality of services provided at Ghasr Shirin.
Head of Kermanshah Kidney Foundation, Hossein Biglari, said that while patients who are suffering from Sarpol-e Zahab earthquake, in addition to suffering from the disease, with heart full of sorrow of death of loved families and destruction of their homes, they have to go to Kermanshah for dialysis.
He said despite all our efforts to help dialysis patients, particularly whom they are suffering from the earthquake, but our facilities are not responsive to this problem, and we are going to reduce the burden of these patients by supporting and assisting donors.
Hossein Biglari with the invitation of the kind people and benefactors to help dialysis patients, said, “It is hoped that these patients will not be left alone.
During the ceremony at the Kidney Foundation of Kermanshah, stationery were prepared for the children of the renal patients and delivered to their mothers. They became so happy.
We wish our patients peace and happiness.
Kidney Foundation of Kermanshah